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The BAHAUsers Support FORUM2. Questions About BAHASingle Sided DeafnessAm I deaf enough?

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04-03-2012, 06:45 PM

1jerome


Junior Member

Registered: 03-03-2012
Total Posts: 41
Am I deaf enough?

    OK, so I titled this to get a few stares...or replies. But really, this is my concern:

    I've had SSD since birth, I presume. I'm 54 years old and always accepted what my parents told me, that hearing aids would not help. Until recently, that is, when I decided that after 50 years, there must be some technological breakthroughs. So after yet another social gathering where I could hear all of the noise, but very little of the conversation at the dinner table, I was glad to have already made the appointment to see an ENT and audiologist.

    Profound hearing loss in the right ear, and trouble hearing the higher frequencies in my good ear. I'm paraphrasing, but that's basically what the Audi said. I can hear low frequencies in my bad ear. Before I went up to see the ENT doc, she mentioned the baha and expressed her opinion that a regular hearing aid in my bad (right) ear would increase the volume but just sound muffled. I totally agree with that.

    Now here is where I get unsure: Then I went up to see the ENT doc. He examined me briefly, then suggested that I first try a regular HA and see how that works for me! Exactly opposite of what the Audi said! Back downstairs, the Audiologist pointed straight back to baha, and gave me a Cochlear Intenso to try with a headband. She told me to wear it as much as I could for a couple weeks.

    Well, I've been working a lot lately, with few days off. I don't wear it at work because I wear hearing protection. So, I have not been in any of those environments that typically give me trouble. Wearing it around the house, I can definitely hear better, but I'm afraid that I've become so adept at hearing everything with my good ear that well, I kinda feel like I can't miss what I never had.

    There's no doubt in my mind that this thing works, and I learned from your posts that it will probably work better after the abutment goes in. And, whenever I have a friend or co-worker try it out with the acrylic holder thing, they are floored by how well it works. It just feels self indulgent and a bit "over-the-top" for me. Almost like...well, like I'm not deaf enough.

    If anyone has had these feelings, I would really appreciate their feedback, or anyone else's for that matter.

04-03-2012, 07:59 PM

19turkeys


Junior Member

Registered: 24-10-2010
Total Posts: 531
Re: Am I deaf enough? (Re: 1jerome)

    Hello Jerome & welcome to the forum!

    "Deaf enough" is a very relative term IMHO. I am SSD on the left but hear pretty darned well in my right. I trialed the Intenso for a day, and that was enough to convince me that I wanted one. I could easily have limped along the rest of my life, but I really wasn't satisfied limping. I was switched on March 21, 2010 and have not regretted it one bit.

    Here is the question you should ask. Rather than are you "deaf enough", in your honest opinion do you feel that you noticed a significant benefit when using the Intenso? If your answer is yes, go for it and do not look back.

    I might also mention that the Intenso is now old technology and has been replaced by the BP110 which is digital. If you decide to go forward you might want to ensure you get the latest and greatest which should provide you with even greater benefits.

    As a resource, I suggest you take a look at my rather lengthy thread that details my journey since December, 2009. Moving Forward

    Best of luck in your decision making process.

    Steve W.
    (Rather gloomy in SW Oregon this AM!)


    SSD, Surgery 13/12/10, bandages off 22/12/10, healing in process.
    "Switch On" 21/03/11.(Intenso)
    Upgraded to BP110 31/05/12
    Long Range Handgun Competitor
    http://rememberingirene.blogspot.com

05-03-2012, 01:25 AM

Jungleveteran


Junior Member

Registered: 19-09-2010
Total Posts: 232
Re: Am I deaf enough? (Re: 1jerome)

    I lost my hearing after 35 years of perfect stereo, it was a massive shock to my system and although I was indirectly encouraged to get the BAHA by the Docs I felt surgery would be another massive adjustment I wasn't ready for. So I kind of put it on ice until I had got my head around the loss. As it turns out , my delay may well have allowed me the opportunity to try a surgery free alternative that has just arrived this side of the pond. Just as well really because if I'm being truthful I don't think the way I feel about my sudden hearing loss- even now a couple of years on- my "ego" would have allowed me to undertake such an invasive procedure as a subcutaneous implant without further psychological discomfort.

    I wanted to hear better, and like you I found a small but significant advantage in the BAHA headband. Maybe your position is less complicated by the trauma of a loss of hearing in the space of five minutes, but I guess the water may be muddied by the fact that you have rubbed along OK up to now. I would just advise you to take your time and choose the treatment that is appropriate to you- there are several new bone-conduction technologies on the horizon now, involving magnets instead of titanium screws (Sophono Alpha 1), implants in the mastoid instead of external vibrating units (Medel Bonebridge), wireless units in the mouth even (Soundbite) as well as one or two older alternatives such as the Transear. There are advantages and disadvantages to all these systems.

    However as my audiologist pointed out, the BAHA and the Ponto have been the favoured SSD treatment up to now where I live and this is where they have the most experience and expertise.

    You pays your money and takes your choice!

    (Edited by Jungleveteran on 05-03-2012, 01:36 AM)

05-03-2012, 05:57 AM

dog-man


Junior Member

Registered: 07-02-2007
Total Posts: 635
Re: Am I deaf enough? (Re: 1jerome)

    Snap!

    I was also 35 when I lost my attachment to a stereo world!




    dog-man


    Two years to diagnose an acoustic neuroma. I was discharged from ENT and a few months later invited back on a hunch by the head consultant there. Told I had two years to live if they did not operate.
    Acoustic Neuroma removed August 18th 1992. Totally Deaf in left ear, now have serious noise damage in right ear.
    Had to learn to walk again. Bells Palsy for a month. Amnesia for a couple of months. Chronic head and neck pain 24/7 for 12 years. Only alcohol helped to ease the pain. Still have some balance problems.
    BAHA OP December 2003.

05-03-2012, 11:13 AM

Jungleveteran


Junior Member

Registered: 19-09-2010
Total Posts: 232
Re: Am I deaf enough? (Re: dog-man)

    I became middle-aged overnight Dogman... grey in my facial hair, muscles went to jelly... just about ready to get back to training now. But jeepers, it's cold out there! :P

05-03-2012, 09:14 AM

julie


Junior Member

Registered: 13-05-2010
Total Posts: 424
Re: Am I deaf enough? (Re: 1jerome)

    Don't really have to say much more than you can see on the signature - went deaf aged 11 - got BAHA aged nearly 60!!

    I never saw anyone in the interim who could have told me that technology moved on, however I am grateful that when I eventually went for a hearing test I finally found out about the BAHA.

    Everyone else has said all the positive stuff so suffice to say I wouldn't be without it.

    jx


    SSD since 1962 thanks to Mumps
    Baha abutment surgery November 2009
    Divino Hearing device March 2010

05-03-2012, 09:55 PM

Arthur


Junior Member

Registered: 11-04-2008
Total Posts: 984
Re: Am I deaf enough? (Re: julie)

    Hi Jerome, I think if you read all of the replies you won't find any negatives, any improvements that can give you a better quality of life can only be a positive and save you struggling at meetings and having to sit on the corner of the table to be able to hear, really it,sa no brainer, try the headband I don't think you will regret it. Arthur in the snowy Auvergne who sent the white stuff back


    deaf in left ear due to heavy anti-biotics, given for meningitis pneumonie (anti-biotics vancomycin plus 8 others) op for baha sep 08 baha intenso mar 09

06-03-2012, 11:46 PM

1jerome


Junior Member

Registered: 03-03-2012
Total Posts: 41
Re: Am I deaf enough? (Re: Arthur)

    Thanks for all of your feedback. It seems most everyone talks about total hearing loss in one ear, and that's not my case. I think that being able to hear louder sounds at low frequencies is just enough to fool me into thinking I don't have a problem. As Jungleveteran pointed out, so far, I've rubbed along OK. In my lifetime, I've learned to hear with one ear. That's my norm. I guess I was hoping for a WOW when I put this thing on. The more I wear the headband, though, the more I recognize the improvement. Plus, I know from your posts that the quality improves when used on the abutment.

    I’m going to get a second opinion as soon as Affinity Health Systems mails me my test results. My insurance only pays for one audiogram per year. If another audiologist thinks the baha is a good approach for me, I will be convinced. In the meantime, the questions keep piling up.


    SSD - Sensorineural Hearing Loss since birth.

07-03-2012, 08:13 AM

julie


Junior Member

Registered: 13-05-2010
Total Posts: 424
Re: Am I deaf enough? (Re: 1jerome)

    A lot of people with SSD (including me) will use phrases like "managed" "rubbed along ok" "got used to it" "get by"- everyone learns to live with disabillities and most of us manage to get by ... however ... as you get older it gets harder to get by and, certainly in my experience and I think others will back me, you only get by with help from others - through later years I always had to take a colleague with me to big meetings, presentations, work social occasions etc to ride shotgun and nudge me when someone spoke or point out a question. Once I got my BAHA I felt comfortable going to these functions alone and instead of managing I became a confident participant (not that I ever lacked confidence but ...)

    As for personal social life I gave it up completely - avoiding any occasion that required me to interact with others, especially sitting down for a meal with someone unfamiliar on my deaf side - that too has changed.

    It didn't bother me too much in my younger years but as I got older I found myself feeling more and more disadvantaged. I am truly grateful that I was given a BAHA and can't tell you how much difference it's made.

    Don't forget that there is quite a difference between a processor on a headband and a processor attached to your skull - there is no skin and hair to work through.

    Keep on asking ...


    SSD since 1962 thanks to Mumps
    Baha abutment surgery November 2009
    Divino Hearing device March 2010

07-03-2012, 08:24 AM

gbuyle


Junior Member

Registered: 02-09-2011
Total Posts: 38
Re: Am I deaf enough? (Re: 1jerome)

    Hi Jerome,

    I have had the same problem as you. I have an hearing loss of -80db in my left ear and a little high freq. loss in my right (good) ear.
    My ENT proposed also to start with a classic HA, and it is a little bit better. But in a groups converstion or if someone talk to you on your "deaf" side is very difficult. I have discussed this problem with my ENT and he advise me to continue with a classic. I went to an other hearing center and are doing another test with an other classic HA, but no spectacular progression. I asked if I can make a test with a Baha and I have test the Oticon Ponto Power Pro with fantastic result. So if everythings go well I have my surgery on 25/05 and I busy to count down the days...
    You can read my search for a better hearing in previous posts.

    Greetings,
    Guy

13-03-2012, 01:42 AM

pearlgirl


Junior Member

Registered: 01-07-2007
Total Posts: 381
Re: Am I deaf enough? (Re: 1jerome)

    IMHO, most of us don't get the "WOW" factor with the Baha. At first I was amazed that I could hear some things I missed in the 5 years since I became single-sided deaf (severe loss, not profound). As time wore on, I wondered if it was making any difference at all - until I forgot to put it on one morning in my rush to get to work! I have normal hearing in my "good" ear, and I feel I benefit from the Baha. I have never regretted it.


    SSD, following Sudden Sensorineural Hearing Loss, December, 2006
    (United States)
    Baha surgery performed December 13, 2010
    Processor received March 2011

15-03-2012, 09:40 PM

1jerome


Junior Member

Registered: 03-03-2012
Total Posts: 41
Re: Am I deaf enough? (Re: pearlgirl)

    Tomorrow is my appointment at a different ENT clinic, where I've already spoken with an audiologist over the phone, and where I'm going for a second opinion. I'm at the point where I really don't need anyone else to tell me that a baha is the right choice. I'm convinced. It seems that, since starting on this journey about three weeks ago, I'm increasingly aware of my hearing loss (I didn't lose it, I never had it). If I could have the surgery tomorrow, I would.

    Frankly, I just don't like the audiologist I've seen. Actually, she's a Doctor of Audiology. While she may be good at her job, she isn't a very good communicator, and I get the feeling that she doesn't want to take the time to explain anything. No matter what choice I make, if it involves a hearing aide, I would be working with her. I suppose I could request a different Audi doc at the same place.

    I am excited to report that I submitted the paperwork for pre-determination by my insurance. That, I'm quite anxious about! My concern is that they will not consider this "medically necessary".

    An interesting little side note: the clinic I'm visiting tomorrow has just spoken with the people from SoundBite (yesterday).


    SSD - Sensorineural Hearing Loss since birth.

22-03-2012, 12:17 PM

Tigger


Advanced Member

Registered: 06-12-2005
Total Posts: 6939
Re: Am I deaf enough? (Re: 1jerome)

    Good luck with checking out your options, Jerome.


    Ear Foundation. Trustee.
    Honorary Member, The Baha Professionals Group.
    1st BAHA 1999.
    2nd BAHA (bilateral) 2003.
    Upgraded to bilateral Ponto Power Summer 2011.
    Goldenhar Syndrome.
    Left profound air conductive loss. Right Chronic Secretory Otitis Media and deteriorating air conductive and some nerve hearing loss.

    Hearing Dog Blog.
    http://lyntoo.wordpress.com/

27-03-2012, 05:15 AM

pearlgirl


Junior Member

Registered: 01-07-2007
Total Posts: 381
Re: Am I deaf enough? (Re: 1jerome)

    <<Frankly, I just don't like the audiologist I've seen. Actually, she's a Doctor of Audiology. While she may be good at her job, she isn't a very good communicator, and I get the feeling that she doesn't want to take the time to explain anything. No matter what choice I make, if it involves a hearing aide, I would be working with her. I suppose I could request a different Audi doc at the same place.>>

    I went through several audies before finding one that suited me - and it was worth the time and effort. The process of adjusting to the Baha can be frustrating, especially during the healing phase and the fine tuning of the processor, so you need someone with whom you are comfortable and can communicate effectively with. You have to feel they have your best interests at heart, IMO.

    My advice would be to try another audie and see if you mesh a little better. Best of luck!


    SSD, following Sudden Sensorineural Hearing Loss, December, 2006
    (United States)
    Baha surgery performed December 13, 2010
    Processor received March 2011

03-06-2012, 12:45 PM

PeteAust


Junior Member

Registered: 03-06-2012
Total Posts: 8
Re: Am I deaf enough? (Re: 1jerome)

    Hi from Peter, Australia. The headband only gives u some idea of what the BAHA would sound like, however the headband is NOT reflective of the BAHA benefits. I have SSD (left ear) and had the op in 2008, it is great, the hearing is wonderful, i was so shocked on the first day, in time i was able to localise sound and have very little hearing problems in a crowd, this had been the best benefit to hear on the deaf side and also able to in most situations hear 2 conversations when people are speaking on both sides, left and right. If i forget to wear the BAHA it is SO BAD, my hearing is bad and i need to keep asking people to repeat themselves. However with the BAHA all these problems go away. I highly recommend the surgery it's worth it and don't worry about the operation as the recovery time for me was good. I must say i did get an infection but the doctor gave me medication to clear the infection 100%, all the best and pls let me know how things go for you, i promise it will change your life. Regards Peter

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